So the RE advised me to stop the add-back (Aygestin) and see if that helped me with my Lupron insomnia. I thought that was totally counterintuitive - hello, no hormones? How's that going to help? But apparently I had gotten over confident in my medical abilities. So I went ahead and skipped the add-back yesterday and took an Ambien yesterday afternoon (I was totally exhausted and was hoping for a little nap before my brain disintegrated) and I actually got some sleep! Like REM sleep, there was dreaming! That arrogant SOB (that would be my RE) was right!!! I took some more Ambien to sleep last night and I slept another couple of hours. Amazingly enough, I didn't pop up at 3 am like some kind of meth addict ready for a cleaning spree. So that's definitely a change.
Now, I'm not really willing to go 6 mo. on Lupron without add-back but maybe we can figure something out. So I'm hopeful that this sleep situation can get turned around.
Only downside is I think I was so delusional from lack of sleep that it was almost dulling the pain. But maybe a few nights of sleep can get me on track and help with the pain.
Thanks for all the ICLW well wishes!!
Take some calcium and vit d for now. Won't help with the hormones but it'll help save your bones! Glad that you got some sleep!!!
ReplyDeleteYAY!!! for the sleep. i hope that you find some relief, the lupron always gave me the oppostie reaction.
ReplyDeleteILCW
Ugh... I remember that all too well from my 6 months on Lupron. I had to go on sleeping pills too about 1/2 way through but they worked wonders! Glad to hear you got some rest!
ReplyDeletehi, I am visiting from ICLW...No. 126 to say hello and to check out your blog.
ReplyDeleteGlad you got some sleep zzzzzzzzzzzz
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