A nerve problem? Off to Houston we go...

I finally got in to see a Pudendal nerve specialist in Houston, Dr. Renney, this week due to a cancellation.  Husband and I are flying down later this week.  I don't usually blog using particular doctors by name but this is an area where there are only about 10 doctors in the US that will diagnose this condition (pudendal nerve entrapment or pudendal neuralgia) so I want to be useful to others seeking information on the internet.

I do not have the classic symptoms but I do have some similar pains and so much else has been ruled out that they think it is worth seeing me and evaluating me.  This will be a 2-day evaluation that includes a PNMLT (Pudendal Nerve Motor Latency Test), a meeting with a physical therapist, a meeting with Dr. Renney, and the CT guided Pudendal Nerve Block.  This is NOT the diagnosis that I want to receive.  All baby-making plans would be put on hold permanently and true pain relief may be permanently out of reach.  The baby issue all the more disturbing to me.

If I do have PNE, essentially nobody is ever cured.  I asked about pregnancy rates because the surgery that they do in Houston involves cutting ligaments in your pelvis and the response was simply you can have a baby if your pain level tolerates it.  I'm not going to start thinking too many steps ahead but I feel really good that I'm going down there this week and I'm going to be able to finally rule this in or out.  If it's in, I've got some other experts lined up to meet with. Let's just hope this isn't it.