Waiting...

I waited by the phone all day Saturday for a scheduled phone consultation with a Dr. down in Texas.  He is a specialist in pudendal nerve entrapment.  We had a call scheduled at Noon and I never reached him.  His call center paged and paged him and I sat by the phone all day waiting.  It was incredibly frustrating.  Hopefully we can get this sorted out and have the call on Monday.  He will be the first PNE specialist that I'll get to talk to who can say thumbs up or thumbs down as to whether I should be evaluated for this.  There are only about 10 of these specialists in the country and none of them are affiliated with large academic institutions.  I've got calls into all of them. Now I'm just waiting...

I started this blog as a chronicle of what was expected to be 6 months on Lupron.  Turned out to be 2.  And 2 unhelpful ones at that.  I'll post soon enough about my experiences all in all on Lupron.  On Thursday I go to the Pain Clinic and this blog may turn into one about life on Methadone in addition to just life waiting for a diagnosis, waiting for a dr. to stop telling me that sometimes things just can't be figured out, waiting to stop logging onto facebook and seeing somebody else had a baby, is pregnant, went to a concert, took a trip, while I'm still laying here waiting to get better.