Welcome to another round of ICLW -- a quick synopsis -- this blog follows my journey to find a diagnosis for my pelvic pain. After hearing a pretty resounding "we can't help you" in my hometown (after a negative laparoscopy for endometriosis or adhesions, a trial of Lupron, and too many other tests to count), I hit the computer, did some research and thought this was a nerve problem. I've been pretty much around the country and now it's looking like I may have genitofemoral neuralgia. Pretty rare. The most difficult part is that I'm still not definitively diagnosed, still have no treatment plan. But, I have *I think* finally found doctors at Hopkins that can help me. So, I've got some optimism on my side as I'm weaning off all my drugs to really see if the nerve blocks they're going to give me will help.
What's difficult and beyond explainably frustrating is that MY choice in when to start my family has now been taken away from me. When this nerve problem will be healed -- I have no idea. But as a doctor bluntly put it to me last week "you're not having a baby next year - get it out of your head." The year after that? I don't know. All I can do is hope and focus on getting better.
Happy ICLW.I hope these docs at Hopkins can help you. {{HUGS}}
ReplyDeleteThanks for your comment. I have boxers too- they're the best!!!
ReplyDeleteGlad things are looking up. Sorry about the doctor's baby comment- that's a little blunt- but at the same time at least he's not saying "never."
ReplyDeleteICLW Good luck with finding answers and moving towards a baby. Thanks for coming by.
ReplyDeleteLooking forward to hearing you report on Hopkins, hope they've got a diagnosis for you!
ReplyDeleteMy goodness...that sounds painful. I hope they can fix your pelvic pain and get you on your way to starting a family!!
ReplyDeleteICLW
Thank you for visiting my blog. I hate the wait for a baby, time seems to go slow. I am pleased you have hopefully got a diagnosis. I hope we get our dream of a baby
ReplyDeletetake care
Nic
ICLW
Thanks for stopping by my blog earlier. I can't imagine having a dr put that so bluntly but I hope you get the diagnosis soon so that you can be on your way to some good ol' fun babymaking ;)
ReplyDeleteLaura-ICLW
Sorry to hear about the chronic pain, but sounds like there's some hope. You're smart to have been your own advocate and pushing for some answers.
ReplyDeleteI hope you get those answers and can start your family soon.
BTW...love your blog template! The flowers are beautiful.
- ICLW
Thanks for stopping by.
ReplyDeleteSome doctors need to be schooled in tact before they can see patients.
Hope you find an answer soon - I understand how frustrating not knowing can be.
*iclw*
Thinking about you and what you are going through. Prayers and lots of good thoughts coming to you from New Orleans!
ReplyDeleteThanks for the intro - that sounds really rough. I have an issue with my sacro-iliac joint and it has been pretty chronic. (But sometimes overshadowed by other stuff.) We share a profession -- long hours, eh?
ReplyDeleteICLW
Happy ICLW week! I am back checking on you also, and I really hope that even if it's not next year you have a baby it'll be the following one and most importantly that you'll be pain free forever. Love, Fran
ReplyDeleteI'm glad you've found a doctor who is giving you some hope. All the best in your new treatments!
ReplyDeleteICLW
Wow that was blunt (and mean) of him to say... Good luck. I hope this year goes by FAST! :)
ReplyDeleteICLW
The fact that doctors do not have a diagnosis is the toughest part...I am so sorry for the chronic pelvic pain...Am not sure what your condition is , but have doctors ever spoken Fibromyalgia? Am a total dork on this....
ReplyDeleteWish you a permanent cure and a clear path to parenthood!
ICLW
I'm sorry you don't have a clear cut diagnosis but, hopefully, the tentative diagnosis will pan out and the nerve block will help. Good luck.
ReplyDelete~ICLW
Here from ICLW...
ReplyDeleteHaving experienced medical mysteries and anomalies as patient and observer, I've learned that it is much less fun than it would seem to baffle the medical establishment. I hope that you've finally found a team that can solve your mystery. Good luck!
Thanks for the intro! Glad to hear that you are on the road to finding a possible cause for your pain and a doctor that can treat you. GL on your journey!
ReplyDeleteICLW
Good luck finding an answer.
ReplyDeleteStopping by for an ICLW visit...
No. 95: The Unfair Struggle (male-factor infertility, good friends, neighborhood rumblings)
Happy ICLW!
ReplyDeleteOh I'm SO glad that you found a doctor to help you! I'm sorry you were told you can't start your family next year. My heart goes out to you and your hubby. I'm sending you lots of love and peace.
*HUGS*
Wishing you the best in your journey to a diagnosis!
ReplyDeleteICLW
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